A Million Dreams Gala is KrabbeConnect’s premium fundraising event. Leaders in the lysosomal disease space, fellows in the medical community, influential gene therapy companies, friends of the foundation, and patients living with the disease will be in attendance.
This year, our gala will look different. In order to keep our community safe and healthy amidst the uncertainty of COVID-19, we have decided to go with a VIRTUAL platform. Anyone from around the world can participate. We’re thrilled to offer every patient and their support network impacted by this deadly disease, the opportunity to be a part of an event where the community listens, lifts them up, and shines hope as they eagerly await a life-saving treatment.
Last year, YOU surpassed our $60,000 goal. The final number came in at $85,000. This year, we are taking a different approach to our 2020 goal. We are truly thankful to be here, providing those directly living with Krabbe disease educational resources to make difficult decisions a bit easier, connecting them to rare disease experts, and participating in research efforts to help #curekrabbe. We hope you join us on Saturday, October 10th, 2020 to learn, to connect with patients living with the disease, and to give if you’re financial able to. Program details will be available in August/September, but you can register now for your bid number!
What will we do with the funds raised?
Funds raised from this gala will go towards filling necessary gaps in research and initiating a patient assistance grant program, an urgent need in the Krabbe disease community. Our work and commitments have not slowed down even with the spread of COVID-19. In fact, our families have expressed additional frustrations and financial concerns as some caregivers have been furloughed and essential therapies and other necessary medical interventions have been put on hold.
KrabbeConnect’s Hope
A favorite KrabbeConnect quote is, ” We make a living by what we get………but we make a life by what we give.”–Winston Churchill. KrabbeConnect is giving individuals and/or families, with or without Krabbe disease, the opportunity to attend free-of-charge. We want people to connect with us, learn about Krabbe disease, and help dedicate 1 evening of HOPE to our heroes–the patients living and no longer living with Krabbe disease.Â
Please join us, Saturday, October 10th, 2020, as a sponsor or as a free-registered attendee. Either way, your attendance and gift of time is very much appreciated.